I started with this disease a few days after Breast Cancer surgery. I am so tired of this aggravating pain. I've heard it lasts 12 to 18 months
or longer. I'm wondering how other people handle it.
Update:My Doctor misdiagnosed it for 2 mos. When it got so I couldn't get out of a chair & had a fever, My husband took me to Urgent Care where I was given a shot of Prednisone. They said Google PR & see if the description fit. It did.
Then another Dr. sent me to a Rheumatologist. He started me with 30 mg. Prednisone last May, I'm on 7 now but the pain never really goes away. I'm allergic to NSAID's. I have a new Primary Dr. From what I found on Google, it rarely affects under 50 yrs old.
There seems to be no sign of Giant Cell Arteritis except I have headaches. Drs. believe it's muscles. Oncologist couldn't do chemo for me because it would affect bones & muscles too much. I had radiation, it was a nightmare, but I survived. Having a little bout with a foggy brain. Have freequent neck, back, hip, foot & joint pains. I'm taking tylenol & tramadol, helps some.
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I'm very sorry to hear about your breast cancer. I hope the surgery went well, aside from the pains and issues related to the PR diagnosis?
I was diagnosed with this a year and a half ago, but I think it was not a legit diagnosis for me. (I'm in my 30s). Are you also having an issue with the enlarged vein in your temples? (giant cell arteritis) Did a Neurologist diagnose you with this condition? (Are they certain that is what you have?)