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Hi Thomas.

I have CRPS in most of my body. It started in my right knee after minor surgery in 1999, then spread to the rest of my leg after more surgery in 2005. Started spreading to my left leg, hands and arms in '08. I also get pain flares over my back and chest and have serious stomach problems & minor heart problems that have been attributed to the CRPS.

How long have you had it for? What sort of treatments have you had? Is anything working for you?

Feel free to drop me a line if you want.

EDIT: Theresa, if you check back on this - your profile doesn't allow email or IM, but I'm always more than happy to chat to anyone who wants advice or needs to vent about this horrible 'beast'. If you want to get in touch, please feel free to do so. Good luck with your appointment too!

Hi. I was diagnosed with it this past June. I have it in my left knee. I had four surgeries in one year with the last one being in march which was a total knee replacement. My knee never got better and actually become worst. My doctor tried several methods of treatment and just could not figure out was was wrong and sent me to one of his partners and he was who diagnosed me rsd.

I actually have a appt tomorrow with a pain management/anesthesiologist doc to see what my options are to help with this horrible pain! Feel free to write me back, it would be nice to talk with someone who knows and feels what you are going through!!